“Waarom ik mijn hersentumor naar Antarctica stuurde”

Instagram simonegiertz (Foto Ariel Waldman)
Youtube-ster Simone Giertz (28) staat bekend om haar doldwaze uitvindingen en gekke, hartelijke humor. Maar het lachen verging haar in april 2018, toen bleek dat ze een hersentumor had. Toch probeert Simone zich met humor door de moeilijke momenten te worstelen. Zo doopte ze haar grote vijand ‘Brian’. En toen tumor Brian operatief verwijderd was, kreeg hij een enkel reisje… naar Antarctica.

Simone Giertz is origineel van Zweden, maar woont nu in San Francisco. Ze werd beroemd op Youtube dankzij allerlei dwaze machines en snufjes die ze uitvindt om haar te helpen met alledaagse taakjes, zoals het aanbrengen van lippenstift of een ontbijt verorberen. Meestal eindigt dat in een spectaculaire knoeiboel. En dus doopte ze zichzelf gepast “de koningin van slechte robots, de minnares van defecten en de moeder van verschrikkelijke bedenksels.” 

Sinds haar eerste video van een ‘slechte robot’ in 2015, heeft ze meer dan 1,5 miljoen Youtube-abonnees bijeen geschaard. Maar in april vorig jaar postte ze plots een video die anders was dan alle anderen. Ze was gediagnosticeerd met een goedaardige hersentumor “zo groot als een golfbal”, vertelde ze. Een operatie om het grootste deel ervan te verwijderen, zou volgen. De boodschap zelf was er wel eentje ‘typisch Simone’, met de nodige lolletjes dus. Ook in haar video’s en posts daarna bleef ze haar humor aansnijden om met het onding - Brian gedoopt, een anagram van ‘brain’ - te leren leven. 

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Een foto die is geplaatst door null (@simonegiertz) op

“Ik ben hoe ik ben”, verklaart Simone aan BBC News. “Humor is de enige manier die ik ken om met zoiets om te gaan. Soms denk ik dat ik mezelf niet helemaal heb toegelaten dit serieus te nemen, omdat ik altijd de eerste moet zijn om ermee te lachen. Maar ik heb ook veel kracht uit die grappige momenten gehaald.”

<div style=" display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #F4F4F4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"></div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style=" background-color: #F4F4F4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"></div> <div style=" background-color: #F4F4F4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"></div></div></div><div style="padding: 19% 0;"></div><div style="display:block; height:50px; margin:0 auto 12px; width:50px;"><svg width="50px" height="50px" viewBox="0 0 60 60" version="1.1" xmlns="https://www.w3.org/2000/svg" xmlns:xlink="https://www.w3.org/1999/xlink"><g stroke="none" stroke-width="1" fill="none" fill-rule="evenodd"><g transform="translate(-511.000000, -20.000000)" fill="#000000"><g><path d="M556.869,30.41 C554.814,30.41 553.148,32.076 553.148,34.131 C553.148,36.186 554.814,37.852 556.869,37.852 C558.924,37.852 560.59,36.186 560.59,34.131 C560.59,32.076 558.924,30.41 556.869,30.41 M541,60.657 C535.114,60.657 530.342,55.887 530.342,50 C530.342,44.114 535.114,39.342 541,39.342 C546.887,39.342 551.658,44.114 551.658,50 C551.658,55.887 546.887,60.657 541,60.657 M541,33.886 C532.1,33.886 524.886,41.1 524.886,50 C524.886,58.899 532.1,66.113 541,66.113 C549.9,66.113 557.115,58.899 557.115,50 C557.115,41.1 549.9,33.886 541,33.886 M565.378,62.101 C565.244,65.022 564.756,66.606 564.346,67.663 C563.803,69.06 563.154,70.057 562.106,71.106 C561.058,72.155 560.06,72.803 558.662,73.347 C557.607,73.757 556.021,74.244 553.102,74.378 C549.944,74.521 548.997,74.552 541,74.552 C533.003,74.552 532.056,74.521 528.898,74.378 C525.979,74.244 524.393,73.757 523.338,73.347 C521.94,72.803 520.942,72.155 519.894,71.106 C518.846,70.057 518.197,69.06 517.654,67.663 C517.244,66.606 516.755,65.022 516.623,62.101 C516.479,58.943 516.448,57.996 516.448,50 C516.448,42.003 516.479,41.056 516.623,37.899 C516.755,34.978 517.244,33.391 517.654,32.338 C518.197,30.938 518.846,29.942 519.894,28.894 C520.942,27.846 521.94,27.196 523.338,26.654 C524.393,26.244 525.979,25.756 528.898,25.623 C532.057,25.479 533.004,25.448 541,25.448 C548.997,25.448 549.943,25.479 553.102,25.623 C556.021,25.756 557.607,26.244 558.662,26.654 C560.06,27.196 561.058,27.846 562.106,28.894 C563.154,29.942 563.803,30.938 564.346,32.338 C564.756,33.391 565.244,34.978 565.378,37.899 C565.522,41.056 565.552,42.003 565.552,50 C565.552,57.996 565.522,58.943 565.378,62.101 M570.82,37.631 C570.674,34.438 570.167,32.258 569.425,30.349 C568.659,28.377 567.633,26.702 565.965,25.035 C564.297,23.368 562.623,22.342 560.652,21.575 C558.743,20.834 556.562,20.326 553.369,20.18 C550.169,20.033 549.148,20 541,20 C532.853,20 531.831,20.033 528.631,20.18 C525.438,20.326 523.257,20.834 521.349,21.575 C519.376,22.342 517.703,23.368 516.035,25.035 C514.368,26.702 513.342,28.377 512.574,30.349 C511.834,32.258 511.326,34.438 511.181,37.631 C511.035,40.831 511,41.851 511,50 C511,58.147 511.035,59.17 511.181,62.369 C511.326,65.562 511.834,67.743 512.574,69.651 C513.342,71.625 514.368,73.296 516.035,74.965 C517.703,76.634 519.376,77.658 521.349,78.425 C523.257,79.167 525.438,79.673 528.631,79.82 C531.831,79.965 532.853,80.001 541,80.001 C549.148,80.001 550.169,79.965 553.369,79.82 C556.562,79.673 558.743,79.167 560.652,78.425 C562.623,77.658 564.297,76.634 565.965,74.965 C567.633,73.296 568.659,71.625 569.425,69.651 C570.167,67.743 570.674,65.562 570.82,62.369 C570.966,59.17 571,58.147 571,50 C571,41.851 570.966,40.831 570.82,37.631"></path></g></g></g></svg></div><div style="padding-top: 8px;"> <div style=" color:#3897f0; 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Een foto die is geplaatst door null (@simonegiertz) op

Dat de operatie om Brian te verwijderen intussen achter de rug is, wisten haar vele volgers wel. Dat ze haar tumor doodleuk naar huis had genomen… dat niet. En al helemaal niet dat ze Brian in tussentijd naar Antarctica heeft verbannen. Begin deze maand postte de 28-jarige een foto op Instagram, die momenteel viraal gaat. “Zie je die ijsberg op de achtergrond? Dat is Antarctica”, schreef ze erbij. “En dat roos ding links? Dat is mijn hersentumor.”

Zo afgelegen mogelijk

Normaal ging Simone eind 2018 zelf naar Antarctica om mee aan een documentaire te werken, maar door haar gezondheidsproblemen kon ze niet mee. Een vriendin ging wel, om ter plaatse waterbeertjes (Tardigrada) te bestuderen. Of zij misschien iets voor Simone moest meenemen? Dat moest je haar geen twee keer vragen: Brian. 

“Ik vond het een heel schattig en aandoenlijk idee”, voegt vriendin Ariel Waldman toe. “Tijdens een urenlange trektocht bij de Canada-gletsjer had ik het perfecte plekje gevonden. Ik vond dat het blauwe van de gletsjer mooi afstak tegen het roze van de hersentumor.” Voor Simone zelf had het iets van een ‘poëtische rechtvaardigheid’. “Als ik zelf niet kon gaan omdat ik te ziek was, was het maar eerlijk ook dat het ding dat me tegenhield, wel ging. Ik wilde hem gewoon naar de meest afgelegen plek ter wereld sturen.” 

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Een foto die is geplaatst door null (@simonegiertz) op

Begin dit jaar kwam er helaas wel opnieuw slecht nieuws. Een deel van de tumor die de dokters niet konden verwijderen omdat dat te gevaarlijk was, is opnieuw aan het groeien. Simone krijgt nu bestraling. “2019 leek zo geweldig te kunnen beginnen. En plots leek het alsof ik een marathon moest lopen waar ik niet voor had getraind, waar ik me zelfs niet voor had ingeschreven. Ik jog mijn weg er nu maar door.” 

Haar humor en veerkracht is ze niet kwijt. “Ik ben niet het meisje met de hersentumor. Ik ben het meisje dat haar hersentumor naar Antarctica stuurde.”

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Een foto die is geplaatst door null (@simonegiertz) op




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